Last February 26th, participants of young and old, came together for a common cause - making a difference in the lives of those affected...

The Office of the United Nations High Commissioner for Human Rights (OHCHR) is calling for inputs on the protection of the human rights...

APARDO extends its congratulations to Prof. Thong Meow-Keong for receiving the 2022 Advocacy Award in this year's American Society of...

As you may be aware, New Zealand lags behind many countries in our recognition and support of people living with a rare disease. This...

PATIENTS AND CAREGIVERS COVID-19 INFORMATION

Senior Minister of State for Health Edwin Tong with Svea Nadia Hertzman, eight, at the children's ward of KK Women's and Children's...

Sushmi Dey | TNN | Updated: Mar 21, 2019, 4:34

During the APEC CEO Summit 2018 from November 15th to 17th, the APEC LSIF Rare Disease Network announced the official launch of a Rare...

The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in...

03-30-2019 06:00 AM CET | Health & Medicine Press release from: Kenneth Research

By Kathleen Calderwood Updated 29 Mar 2019, 8:50am A groundbreaking drug that slows the progression of a rare and fatal childhood illness...

Discussions included ‘Countries emerging to the challenges of rare diseases: from grassroots level to the policy level’

RDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaboration