apardo-adminFeb 16, 20211 minRDNZ PetitionAs you may be aware, New Zealand lags behind many countries in our recognition and support of people living with a rare disease. This...
apardo-adminMay 6, 20201 minNovartis Responding to the COVID-19 OutbreakPATIENTS AND CAREGIVERS COVID-19 INFORMATION
apardo-adminOct 8, 20191 minNew fund helps patients with rare diseases cope with medical expensesSenior Minister of State for Health Edwin Tong with Svea Nadia Hertzman, eight, at the children's ward of KK Women's and Children's...
apardo-adminOct 8, 20191 minIndian Government has decided to waive local clinical trials where treatments are approved & marketSushmi Dey | TNN | Updated: Mar 21, 2019, 4:34
apardo-adminOct 8, 20191 minPress Release on APEC's Rare Disease Action PlanDuring the APEC CEO Summit 2018 from November 15th to 17th, the APEC LSIF Rare Disease Network announced the official launch of a Rare...
apardo-adminOct 8, 20191 minRare Disease Day 2019The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in...
apardo-adminOct 8, 20191 minGlobal orphan drugs market will multiply by 202403-30-2019 06:00 AM CET | Health & Medicine Press release from: Kenneth Research
apardo-adminOct 8, 20191 minBatten disease medication Brineura available to Australian children via Life-Saving Drugs ProgramBy Kathleen Calderwood Updated 29 Mar 2019, 8:50am A groundbreaking drug that slows the progression of a rare and fatal childhood illness...
apardo-adminOct 8, 20191 minA momentous day at the United Nations in New York – the Rare Disease Day Policy EventDiscussions included ‘Countries emerging to the challenges of rare diseases: from grassroots level to the policy level’
apardo-adminOct 8, 20191 minRDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaborationRDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaboration