As you may be aware, New Zealand lags behind many countries in our recognition and support of people living with a rare disease. This...

PATIENTS AND CAREGIVERS COVID-19 INFORMATION

Senior Minister of State for Health Edwin Tong with Svea Nadia Hertzman, eight, at the children's ward of KK Women's and Children's...

Sushmi Dey | TNN | Updated: Mar 21, 2019, 4:34

During the APEC CEO Summit 2018 from November 15th to 17th, the APEC LSIF Rare Disease Network announced the official launch of a Rare...

The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in...

03-30-2019 06:00 AM CET | Health & Medicine Press release from: Kenneth Research

By Kathleen Calderwood Updated 29 Mar 2019, 8:50am A groundbreaking drug that slows the progression of a rare and fatal childhood illness...

Discussions included ‘Countries emerging to the challenges of rare diseases: from grassroots level to the policy level’

RDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaboration