Cycle For Rare: IORD’s Bikeathon, Walkathon for Rare Disease Draws Huge Response
Last February 26th, participants of young and old, came together for a common cause - making a difference in the lives of those affected...
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Oct 8, 20221 min
UN Call in Input
The Office of the United Nations High Commissioner for Human Rights (OHCHR) is calling for inputs on the protection of the human rights...
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Jul 25, 20221 min
Congratulations to Prof. Thong Meow Kong - American Society of Human Genetics (ASHG) Award Winner
APARDO extends its congratulations to Prof. Thong Meow-Keong for receiving the 2022 Advocacy Award in this year's American Society of...
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apardo-admin
Feb 16, 20211 min
RDNZ Petition
As you may be aware, New Zealand lags behind many countries in our recognition and support of people living with a rare disease. This...
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apardo-admin
May 6, 20201 min
Novartis Responding to the COVID-19 Outbreak
PATIENTS AND CAREGIVERS COVID-19 INFORMATION
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apardo-admin
Oct 8, 20191 min
New fund helps patients with rare diseases cope with medical expenses
Senior Minister of State for Health Edwin Tong with Svea Nadia Hertzman, eight, at the children's ward of KK Women's and Children's...
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apardo-admin
Oct 8, 20191 min
Indian Government has decided to waive local clinical trials where treatments are approved & market
Sushmi Dey | TNN | Updated: Mar 21, 2019, 4:34
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apardo-admin
Oct 8, 20191 min
Press Release on APEC's Rare Disease Action Plan
During the APEC CEO Summit 2018 from November 15th to 17th, the APEC LSIF Rare Disease Network announced the official launch of a Rare...
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apardo-admin
Oct 8, 20191 min
Rare Disease Day 2019
The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in...
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apardo-admin
Oct 8, 20191 min
Global orphan drugs market will multiply by 2024
03-30-2019 06:00 AM CET | Health & Medicine Press release from: Kenneth Research
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apardo-admin
Oct 8, 20191 min
Batten disease medication Brineura available to Australian children via Life-Saving Drugs Program
By Kathleen Calderwood Updated 29 Mar 2019, 8:50am A groundbreaking drug that slows the progression of a rare and fatal childhood illness...
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apardo-admin
Oct 8, 20191 min
A momentous day at the United Nations in New York – the Rare Disease Day Policy Event
Discussions included ‘Countries emerging to the challenges of rare diseases: from grassroots level to the policy level’
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apardo-admin
Oct 8, 20191 min
RDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaboration
RDI and EURORDIS meet with Dr Tedros, Director-General of the WHO, to discuss future collaboration
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