APARDO Community

Member Organizations

Australian Sickle Cell Advocacy Inc

Canadian Organization of Rare Disorders

Carcinoid & Neuroendocrine Tumor Society of Singapore

Chinese Organisation for Rare Disorders

Crohn's & Colitis Society of Singapore

Dakshayani and Amaravati Health and Education, India

Debra Singapore

Genetic Support Network of Victoria, Australia

Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

Indian Organization for Rare Diseases

Lysosomal Storage Disorders Support Society, India

Malaysian Rare Disorders Society

Mito Foundation

New Zealand Amyloidosis Patients Association

NPO Asrid, Japan

Organization of Rare Diseases India

Philippine Society for Orphan Disorders

Psoriasis Association Taiwan

Rare Cancers Australia

Rare Disease Hong Kong (formerly Hong Kong Alliance for Rare Diseases)

Rare Diseases Foundation of Iran

Rare Disorders New Zealand

Rare Voices Australia

SCN2A Australia/NZ/Asia

Spinal Muscular Atrophy Malaysia

Thai Rare Disease Foundation, Thailand

The Illness Challenge Foundation, China

Tuberous Sclerosis Complex Association of Hong Kong

Vietnamese Organization for Rare Diseases

We Care Journey, Malaysia

Partner Organizations

Pfizer

Takeda

Biogen 

Roche

CSL Behring

Illumina

AstraZeneca

Alnylam Pharmaceuticals

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Help us make a greater impact across the Asia Pacific region.

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If you have any questions or would like more information about rare disease in Asia Pacific, our advocates around the region will be happy to help.

Email Us

Phone:  (65) 9385 5053

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