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APARDO Conference 2026
📍 Hotel Metropolitan Haneda, Haneda Innovation City Zone A 1-1-4 Haneda Airport, Ota-ku, Tokyo Japan
This year’s APARDO Conference is designed to focus on turning commitment into action. Together, we'll explore how we can move from rare disease commitments to practical, measurable regional implementation, with Japan serving as a bridge between mature systems, growing ASEAN momentum, and the WHO Global Action Plan.
This is more than a conference. It's a pivotal moment for our community. Patients, advocates, policymakers, and healthcare leaders will unite to assess rare disease readiness at both the local and regional level, and to chart a clear path toward actionable outcomes that make a real difference.
Event Location
Day 0: Friday, November 6 (10:00AM – 8:00PM JST)
Day 1: Saturday, November 7 (8:30AM – 6:30PM JST)
Day 2: Sunday, November 8 (9:00AM – 4:45PM JST)
Who Can Attend
APARDO Members and Sponsors
As a token of our appreciation for your ongoing support, APARDO members and sponsors can attend the conference free* of charge.
Check your inbox for the registration link that has been emailed to you. Secure your spot today!
If you have not received our invite, please drop us an email at: admin@apardo.org
*Terms and conditions apply
If you have any questions or would like to inquire about sponsorship opportunities, please do not hesitate to contact us at admin@apardo.org.
Event Agenda
Preliminary Agenda - Our Key Topics
Please note that this agenda is subject to change.
About APARDO Annual Conference
The Asia Pacific Alliance of Rare Disease Organizations (APARDO) brings together patient advocate leaders from across the Asia Pacific region representing rare diseases and rare cancers, with the goals of sharing experiences and learning, increasing the patient voice, and working together on common goals, facilitating research, sharing resources and best practices, and collaborating on joint initiatives.
Here are some highlights from our APARDO Conference 2025
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