Events

  • China Conference on Rare Diseases, Beijing
    China Conference on Rare Diseases, Beijing
    Details
    Oct 30, 9:00 AM GMT+8 – Oct 31, 5:00 PM GMT+8
    China Conference on Rare Diseases, Beijing
    hosted by China Alliance for Rare Diseases (CARD)
  • Health Technology Assessment in South Korea
    Zoom Online Workshop
    Details
    Oct 25, 12:00 PM – 1:30 PM GMT+8
    Zoom Online Workshop
    We will also hear from fellow patient organisations on their experiences in working with the government to improve access to treatments.
  • Navigating the health system in India
    Zoom Online Workshop
    Details
    Oct 21, 10:00 AM – 11:30 AM GMT+5:30
    Zoom Online Workshop
    We will explore the current health system in India, and how patient organisations can work with the Indian government to improve access to care, and ultimately improve patient outcomes.
  • Health Technology Assessment in Taiwan
    Zoom Virtual Workshop
    Details
    Oct 15, 1:30 PM – 3:00 PM GMT+8
    Zoom Virtual Workshop
    This will be a great chance to hear from both the government perspective as well as the patient organisation perspective on HTA systems in Taiwan.
  • Living with Rare Disease: Redefining Sustainable Healthcare Access for Rare Disease Patients in a Pandemic
    Webinar
    Details
    Sep 23, 2:00 PM GMT+8
    Webinar
    a panel discussion convened by Axios international
  • 10th China Rare Disease Summit, Hangzhou
    10th China Rare Disease Summit
    Details
    Sep 10, 9:00 AM GMT+8 – Sep 12, 5:00 PM GMT+8
    10th China Rare Disease Summit
    hosted by Chinese Organization for Rare Disorders (CORD)
  • Role of Public Health - Rare Diseases
    Role of Public Health - Rare Diseases
    Details
    Sep 02, 4:30 PM – 6:30 PM GMT+5:30
    Role of Public Health - Rare Diseases
    hosted by Indian Organization For Rare Diseases (IORD)
  • Report Launch "Living with SMA in Malaysia"
    Webinar
    Details
    Aug 21, 10:30 AM – 12:30 PM GMT+8
    Webinar
  • Rare Disease Symposium on Collaboration and Communication, Beijing
    Rare Disease Symposium on Collaboration and
    Details
    Jul 17, 9:00 AM GMT+8 – Jul 18, 5:00 PM GMT+8
    Rare Disease Symposium on Collaboration and
    hosted by Illness Challenge Foundation (ICF)
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If you have any questions or would like more information about rare disease in Asia Pacific, our advocates around the region will be happy to help.

Email Us

Phone:  (65) 9385 5053

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