Batten disease medication Brineura available to Australian children via Life-Saving Drugs Programapardo-adminOct 8, 20191 min readBy Kathleen CalderwoodUpdated 29 Mar 2019, 8:50amA groundbreaking drug that slows the progression of a rare and fatal childhood illness has been given funding through the Federal Government's Life-Saving Drugs Program.
Successful first edition of the EU-China Rare Disease Policy and Access Summit brings together European & Chinese rare disease communities
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