New Zealand Community Spotlight: Neck’s Best Thing Leads the Way!

Rare Disorders New Zealand's fundraiser "Neck's Best Thing!" have raised an outstanding $1,330 , directly supporting the 300,000 Kiwis living with rare conditions. This generous contribution is a shining example of how local community spirit can create real, lasting impact for the rare community by strengthening Rare Disorders NZ's essential work in navigation support, lived-experience storytelling, and national advocacy - helping ensure people with rare conditions continue to be advocated for.

Be Part of the Movement - Start Your Own Fundraiser

Inspired by what Neck’s Best Thing achieved?

Your workplace, club, school, sports team, or community group can do the same!

This month Rare Disorders NZ is inviting groups across the country to join our peer‑to‑peer campaign Glow Up and Show Up for Rare - a fun, flexible way to support rare disorders and bring your community together for a meaningful cause.

Start a fundraiser here:

https://glowupforrare.raiselysite.com/

Donate here:

https://glowupforrare.raiselysite.com/donate

Every fundraiser, no matter the size, helps us deliver essential navigation support, share lived‑experience stories, and push for systemic change through our national advocacy work.