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APARDO Conference 2020

VIRTUAL

Transforming Rare Disease Across the Asia Pacific

Wed, 9 December 2020, 9:00 AM [SGT]

Thu, 10 December, 9:00 AM [SGT]

 ABOUT THE EVENT 
Getting It Done Right: Making Small Interventions in Advancing Rare Disease Programs

APARDO Conference is an annual event that aims to help patient advocates representing national and regional patient-centric organizations effectively deliver, share best practices, develop skills and adopt coordinated strategies for improving rare disease patient outcomes.  Learn common barriers and how to share strategies that RD organizations can successfully employ.  Participants will be joined by leading research organizations, public health agencies, and the biopharma industry.

HIGHLIGHTS

  • Presentations by and discussions between multiple stakeholders

  • Opportunities to network with patient advocates from across the Asia Pacific

 
 
SPEAKERS
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Dr. Ritu Jain

President

APARDO

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Prof. John Lim

Executive Director, Centre of Regulatory Excellence, Duke-National University of Singapore Medical School (Duke-NUS)

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Dr. Durhane Wong-Rieger

Vice President

APARDO

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Prof. Ian Wong

Head, Department of Pharmacology and Pharmacy, University of Hong Kong

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Dr. Susanne Weissbaecker

Global Head of Access to Medicines, Takeda

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Prof. Binyan Sui 

Associate Researcher, Division of Health Policy Evaluation and Technology Assessment, China National Health Development and Research Centre.

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Mr. Matt Bolz-Johnson

ERN & Healthcare Advisor, EURORDIS

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Prof. Shio Jin Lin

Director, Genetic Counseling Center

Chi Mei Hospital, Taiwan

Agenda
9 DEC
APAC RARE DISEASE ON THE MOVE  
Haf-day session (9:00 AM - 12:00 PM)
  • West: Brief Overview of Orphan Drug Acts in the USA and European Union (subsidies for R&D and commercialization of orphan drugs to companies) 

  • East: Unique origins of rare disease activities in APAC countries (support services and access to treatment for patients)

  • Rare Disease Initiatives in APAC Region

      -    Singapore

      -    Hong Kong

      -    China

  • COVID-19 : Addressing Priority Needs Across the APAC Region

AGENDA
9 DEC
APAC RARE DISEASE ON THE MOVE  
Haf-day session (9:00 AM - 12:30 PM)
  • West: Brief Overview of Orphan Drug Acts in the USA and European Union (subsidies for R&D and commercialization of orphan drugs to companies) 

  • East: Unique origins of rare disease activities in APAC countries (support services and access to treatment for patients)

  • Rare Disease Initiatives in APAC Region

      -    Singapore

      -    Hong Kong

      -    China

  • COVID-19 : Addressing Priority Needs Across the APAC Region

10 DEC
GLOBAL REFERENCE, APAC NATIONAL ACTION PLAN
Haf-day session (9:00 AM - 12:30 PM)
  • Collaborative Global Network for Rare Diseases

  • APEC Action Plan for Rare Diseases and Universal Health Coverage

  • Key Findings of the Economist Report "Suffering in Silence"

  • Global Access to Medicines

  • Advancing Rare Disease Policy and Actions in APAC Region

 
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SPONSORS
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ASIA PACIFIC ALLIANCE OF RARE DISEASE ORGANISATIONS

Be a member of APARDO and stay ahead of the Rare Disease global communities and initiatives.

What

APARDO 

Conference 2020

When

9 - 10 

December 2020

Where

Virtual
(via Zoom)

Contact Us

To learn more, don't hesitate to get in touch.

Email Us

Tel. No. +65 6337 1900

 

© 2019 by Asia Pacific Alliance of Rare Disease Orgnaisations