ABOUT THE EVENT
Getting It Done Right: Making Small Interventions in Advancing Rare Disease Programs
APARDO Conference is an annual event that aims to help patient advocates representing national and regional patient-centric organizations effectively deliver, share best practices, develop skills and adopt coordinated strategies for improving rare disease patient outcomes. Learn common barriers and how to share strategies that RD organizations can successfully employ. Participants will be joined by leading research organizations, public health agencies, and the biopharma industry.
HIGHLIGHTS
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Presentations by and discussions between multiple stakeholders
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Opportunities to network with patient advocates from across the Asia Pacific
SPEAKERS
Dr. Ritu Jain
President
APARDO
Prof. John Lim
Executive Director, Centre of Regulatory Excellence, Duke-National University of Singapore Medical School (Duke-NUS)
Dr. Durhane Wong-Rieger
Vice President
APARDO
Prof. Ian Wong
Head, Department of Pharmacology and Pharmacy, University of Hong Kong
Dr. Susanne Weissbaecker
Global Head of Access to Medicines, Takeda
Prof. Binyan Sui
Associate Researcher, Division of Health Policy Evaluation and Technology Assessment, China National Health Development and Research Centre.
Mr. Matt Bolz-Johnson
ERN & Healthcare Advisor, EURORDIS
Prof. Shio Jin Lin
Director, Genetic Counseling Center
Chi Mei Hospital, Taiwan
Agenda
9 DEC
APAC RARE DISEASE ON THE MOVE
Haf-day session (9:00 AM - 12:00 PM)
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West: Brief Overview of Orphan Drug Acts in the USA and European Union (subsidies for R&D and commercialization of orphan drugs to companies)
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East: Unique origins of rare disease activities in APAC countries (support services and access to treatment for patients)
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Rare Disease Initiatives in APAC Region
- Singapore
- Hong Kong
- China
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COVID-19 : Addressing Priority Needs Across the APAC Region
AGENDA
9 DEC
APAC RARE DISEASE ON THE MOVE
Haf-day session (9:00 AM - 12:30 PM)
-
West: Brief Overview of Orphan Drug Acts in the USA and European Union (subsidies for R&D and commercialization of orphan drugs to companies)
-
East: Unique origins of rare disease activities in APAC countries (support services and access to treatment for patients)
-
Rare Disease Initiatives in APAC Region
- Singapore
- Hong Kong
- China
-
COVID-19 : Addressing Priority Needs Across the APAC Region
10 DEC
GLOBAL REFERENCE, APAC NATIONAL ACTION PLAN
Haf-day session (9:00 AM - 12:30 PM)
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Collaborative Global Network for Rare Diseases
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APEC Action Plan for Rare Diseases and Universal Health Coverage
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Key Findings of the Economist Report "Suffering in Silence"
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Global Access to Medicines
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Advancing Rare Disease Policy and Actions in APAC Region
SPONSORS
ASIA PACIFIC ALLIANCE OF RARE DISEASE ORGANISATIONS
Be a member of APARDO and stay ahead of the Rare Disease global communities and initiatives.
What
APARDO
Conference 2020
When
9 - 10
December 2020
Where
Virtual
(via Zoom)
© 2019 by Asia Pacific Alliance of Rare Disease Orgnaisations