APARDO Survey: Rare Disease Patient Registries in APAC

APARDO members are encouraged to take part in our survey.

Patient registries play a pivotal role in advancing research, understanding disease progression, and facilitating communication among rare disease stakeholders. This survey aims to gather information about the awareness, utilization, and effectiveness of patient registries in the APAC region. Your participation will aid in developing strategies to enhance the impact of patient registries and strengthen collaboration within our community.