APARDO Conference 2022
📍 Holiday Inn Bangkok Sukhumvit, Thailand
Day 1: Friday, November 25 (6:00PM – 9:00PM ICT)
Day 2: Saturday, November 26 (8:00AM – 7:00PM ICT)
Day 3: Sunday, November 27 (8:30AM – 1:00PM ICT)
Registration is Free
About The Event
Advancing Rare Disease Programs
The Asia Pacific Alliance of Rare Disease Organizations (APARDO) brings together patient advocate leaders from across the Asia Pacific region representing rare diseases and rare cancers, with the goals of sharing experiences and learning, increasing the patient voice, and working together on common goals, facilitating research, sharing resources and best practices, and collaborating on joint initiatives.
Since 2021, countries across the Asia Pacific (APAC) region were slowly returning to "normal" with events becoming "in-person" once again.
This year, we are happy to announce that our annual conference will be held in-person and in Thailand!
With seven planned sessions, collaboration roundtables and networking opportunities over the course of two-and-a-half-days, we hope you will join us as a sponsor and as a participant.
Presentations by and discussions between multiple stakeholders
Opportunities to network with patient advocates from across the Asia Pacific
Full agenda to follow
Rare Disease - A Family Affair
Better Beginnings: Newborn Screening, Genetic Testing, Genomic Sequencing, Genetic Education
Parade of Asia Pacific Nations: Advances in Rare Disease Policies and Programs Improving Awareness, Education, Diagnosis, Care, Treatment, and Support
Collaborating for Success Examples from across Asia-Pacific Region
Patient-Powered Registries: How to Share and Use Your Data while Maintaining Privacy and Control
Living Well: Resources and Strategies to Empower Individuals, Families, and Communities
Leave No One Behind: Leveraging "UN Declaration on Rare Diseases" and UN/WHO Universal Health Coverage to Advocate for Rare Disease Equity and Inclusion