The Asia Pacific Alliance of Rare Disease Organizations (APARDO) brings together patient advocate leaders from across the Asia Pacific region representing rare diseases and rare cancers, with the goals of sharing experiences and learning, increasing the patient voice, and working  together on common goals, facilitating research, sharing resources and best practices, and collaborating on joint initiatives.

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In 2020, countries across the Asia Pacific (APAC) region were all affected by COVID-19 with varying impact but common challenges of delays and denials for access to diagnosis, care, treatment, support and prevention.

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What was also shared was the commitment to "staying the course" on rare disease and the hope that 2021 was a gradual return to "normal". Unfortunately, we have not been able to return to an "in-person" conference but we will be holding our 2021 December regional conference.

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As we collectively pivot from the pandemic, we are looking forward to renewing our focus on essential rare disease initiatives. The theme of the conference is “Treating Rare Disease as Priority” with six planned sessions, as outlined in the attached agenda. 

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We invite you to join us as a sponsor and as a participant.

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HIGHLIGHTS

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• Presentations by and discussions between multiple stakeholders

• Opportunities to network with patient advocates from across the Asia Pacific